ما تعلمته عندما حدث الأسوأ، كأم | ليندسي فالستروم | TEDxMtHood

في هذا الحديث من TEDxMtHood، تشارك ليندسي فالستروم، المختصة في البحوث السريرية والأم، الدروس التي تعلمتها خلال علاج ابنتها رونا من مرض نادر. شُخصت رونا بالمرض وتوفيت منه في عام 2023. تصف فالستروم كيف تجد الأمل والمعنى بعد هذه الخسارة. ويتناول الحديث أيضاً كيفية تعريف النتائج والمساعدة في الرعاية الصحية.

• سرد شخصي عن رعاية طفل خلال علاج مرض نادر
• منظور باحثة سريرية وأم
• إيجاد الأمل والمعنى بعد فقدان

In this deeply personal talk, Lindsey Wahlstrom shares the lessons she learned as both a clinical research professional and a mother navigating her daughter Rona’s rare disease treatment. And how she is finding hope and purpose after her daughter's death. Lindsey Wahlstrom works at the intersection of medical research, caregiving, and meaning-making. After more than a decade supporting patient engagement across 200+ clinical trials, Lindsey’s understanding of success in healthcare was radically reshaped when her daughter, Rona, was diagnosed with and died from a rare disease in 2023. She is the co-founder and Chief Momatologist of Rona’s FUN LAB, a nonprofit supporting critically ill children and the teams who care for them, alongside her ongoing work in patient engagement and research. Her work challenges how we define outcomes — and what it truly means to help. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx