Lo que aprendí cuando ocurrió lo peor, como madre | Lindsey Wahlstrom | TEDxMtHood

En esta charla de TEDxMtHood, Lindsey Wahlstrom, profesional de la investigación clínica y madre, comparte lo que aprendió durante el tratamiento de su hija Rona por una enfermedad rara. Rona fue diagnosticada y murió por esta enfermedad en 2023. Wahlstrom describe cómo está encontrando esperanza y sentido tras la pérdida. La charla también cuestiona cómo se definen los resultados y el significado de ayudar en la atención sanitaria.

• Un relato personal sobre el cuidado de una hija durante el tratamiento de una enfermedad rara
• La mirada de una profesional de la investigación clínica y de una madre
• Encontrar esperanza y sentido después de una pérdida

In this deeply personal talk, Lindsey Wahlstrom shares the lessons she learned as both a clinical research professional and a mother navigating her daughter Rona’s rare disease treatment. And how she is finding hope and purpose after her daughter's death. Lindsey Wahlstrom works at the intersection of medical research, caregiving, and meaning-making. After more than a decade supporting patient engagement across 200+ clinical trials, Lindsey’s understanding of success in healthcare was radically reshaped when her daughter, Rona, was diagnosed with and died from a rare disease in 2023. She is the co-founder and Chief Momatologist of Rona’s FUN LAB, a nonprofit supporting critically ill children and the teams who care for them, alongside her ongoing work in patient engagement and research. Her work challenges how we define outcomes — and what it truly means to help. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx