最悪の事態が起きたとき、親として学んだこと | リンゼイ・ワールストロム | TEDxMtHood

臨床研究の専門家であり母親でもあるLindsey Wahlstromが、娘Ronaが希少疾患の治療を受けていた期間に得た教訓を語ります。Ronaは2023年に診断を受け、同年に亡くなりました。Wahlstromは喪失の後に希望と目的を見いだしつつあること、そして自身の仕事を通じて、成果や支援がどのように定義されるかを問い直していることを話しています。Wahlstromは200以上の臨床試験で患者エンゲージメントに携わってきました。本動画はTEDxMtHoodによるものです。

• 希少疾患の治療中に子どもを看病した親による個人的な体験談
• 臨床研究の専門家であり親でもある話者の視点
• 喪失の後に希望と目的を見いだすこと

In this deeply personal talk, Lindsey Wahlstrom shares the lessons she learned as both a clinical research professional and a mother navigating her daughter Rona’s rare disease treatment. And how she is finding hope and purpose after her daughter's death. Lindsey Wahlstrom works at the intersection of medical research, caregiving, and meaning-making. After more than a decade supporting patient engagement across 200+ clinical trials, Lindsey’s understanding of success in healthcare was radically reshaped when her daughter, Rona, was diagnosed with and died from a rare disease in 2023. She is the co-founder and Chief Momatologist of Rona’s FUN LAB, a nonprofit supporting critically ill children and the teams who care for them, alongside her ongoing work in patient engagement and research. Her work challenges how we define outcomes — and what it truly means to help. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx